Just Don't Talk to Me

Dropped night time insulin by two units and
mealtime insulin by two units to compensate for the
heavy activity schedule as well as the heat.

Camp bg numbers so far:

dinner    bg 156
bedtime bg 217
bkfst      bg 145
lunch     bg 158


How did I get these figures from camp, you ask?

The health aide (no nurse or medical personnel on staff) texts them to me! I gave her four pages of information related to managing Riley's diabetes yesterday when I dropped him off.

• Page 1 - their meal schedule for the week with my added carb counts from Calorie King and other sources
• Page 2 - log to keep track of each bg test, carb count per meal and insulin unit amount injected
• Page 3 - list of low symptoms and treatment procedure & list of the supplies and where they can be found in the dining hall. (ie back up insulins in the refrigerator, testing supplies/snacks/ketone strips/glucagon in the plastic bin and ice packs (one for each day) for bg meter in the freezer)
• Page 4 - our contact numbers and MUSTS for Riley: kit in his knapsack on his back with fast acting candy & lists of when to contact me - bg over 200 in the morning, bg over 300 anytime, a low under 65 and any insulin injection error

Also left a 1 cup measuring cup for cereal and pasta and a bottle of lite syprup for the breakfast goodies that will sky-rocket his blood sugar. And an old 33oz water bottle for sharps storage.

As I said goodbye, leaving him in the hands of a 19 yr old health aid, I tested the water by saying I would see him Wednesday just to check his numbers and make any insulin changes on my way to a job in a nearby town. I had to say it twice to really get his attention to which he replied, "OK, but just don't talk to me."

Camp Checklist

• worry
• contacted camp via email outlining diabetes procedures-attempting to overwhelm without success
• contacted CDE to outline procedure for lowering evening Lantus, before meal Novolog, review the camp schedule for hot spots for lows
• worry
• purchased single serving snacks of 15 g carbs
• checked schedule for best time to covertly visit camp
• worry
• watched video of daughter's visit to camp and studied games intensely, very sure of low possibility

Going To Camp

Riley has been to the same summer camp for one week every year since he was 8. I should add right now that it took ten years off my life dropping him off that day 6 years ago. Now, even his little sister has put in her third summer camp experience. The camp is about 22 minutes from our house, has a great staff and tons of their school/church friends attend.


At camp, 2 yrs ago-before D

Riley decided he was bored with camp and didn't want to go this summer. I was shocked. But he does tend to say he doesn't want to participate in some activity and then when forced has a great time. 

This time I didn't want to force. This isn't diabetes camp. This is regular camp. There are no licensed medical people. No one hired to watch my kid and be sure his blood glucose is in range, checking bg regularly, calculating carbs properly, dosing mealtime and evening insulin, considering the extensive activity and preventing lows.

We had a talk with Riley and explained he had to do something productive with his summer. Maybe golf camp - three hours each morning for a week. Something. Today, he said he would rather just go to camp - the one he goes to every summer! I am beside myself. It is no good being myself and next to me is so much worse.